Hunting For a Cure is a nonprofit organization striving to provide the Hunter syndrome/MPS II community with medical, fundraising, and advocacy opportunities that help fund the cure.Our goal is to continuously develop new and diversified campus and community partnerships, strengthen fundraising and gifting potential, and provide resources and life-bettering opportunities for the Hunter syndrome community.
We began as a service-learning project in Courtney Dwyer Satkoski’s Civic Engagement course at Florida Gulf Coast University (FGCU) in Fort Myers, Florida. Since 2016, students in Satkoski's courses have partnered with SWFL community members, physicians, volunteers, and stakeholders to educate, fundraise, and advocate on behalf of patients diagnosed with Hunter syndrome. The project, turned nonprofit, has held community-wide fundraising events and collaborated with FGCU Athletics, Greek Life, Housing, and the Honors College to host special events for patients diagnosed with Hunter syndrome. We have connected with families and advocates worldwide to advance our mission and expand our story. We have been featured on television programs, in magazines and newspapers, presented at state and national conferences, and earned over a dozen awards at University-wide showcases, including Creating Healthy Communities, Peoples Choice, Overall Best Course Based Project, Most Engaged, Overall Best Independent Award, and Phenomenal First Year Project.
In January 2018, we began our partnership with Project Alive, a nonprofit organization advocating for early diagnosis and clinical trials for Hunter syndrome patients, to deepen collective impact, share resources, and expand fundraising. 100% of all donations, event and merchandise proceeds, and award and grant monies, are used exclusively to fund the cure. See how close we are to reaching our 2.5 million dollar goal here.